March 5, 2024

Child welfare 1: why do parents need to approve of child euthanasia?

New York bioethicist says that experts should decide

Why do doctors need the consent
of parents before euthanasing a child? This is the startling question
posed in the advance on-line issue of the journal Bioethical
. Jacob M. Appel, a freelance bioethicist with a liking
for radical theories, proposes that “While, in theory, allowing
parents to render their own decision as to ‘how much suffering is
too much suffering’ is speciously appealing… caregivers are
ultimately less suited to make such determinations than medical

Of course, euthanasia is illegal
everywhere in the US, so Appel’s idea is largely theoretical — although Oregon and Washington have legalised physican-assisted suicide. But
there are jurisdictions where it is already being applied in a
modified form. For instance, the 1999 Texas Advance Directives Act
permits doctors to remove “futile” treatment against relatives’
wishes. In 2005, in Hudson v Texas Children’s Hospital, the courts
upheld the right of the hospital to withdraw life support from a
seriously ill infant against the mother’s wishes.

In the Netherlands, child euthanasia is
already permitted under the Groningen Protocol (even though it is,
strictly speaking, illegal) if children are suffering unbearably.
However, even the protocol stipulates that parents must give their
consent. Appel asks, why?

His observation is that US law is
steadily moving towards a model which requires not parental consent,
but parental permission. This elevates the child’s welfare (as
determined by doctors) over the opinion of parents. In some
situations, such as blood transfusions for Jehovah Witness children,
this seems understandable. But Appel asks, if it is allowable in
life-sustaining situations, why not in life-terminating ones?

In another thought-provoking twist,
Appel points out that non-traditional families are hard-wired for
conflict and that doctors need to take charge.

To allow
adversarial parents to litigate over whether to euthanize a
terminally-ill infant — while that infant suffers in the
interim—seems a highly-inflammatory approach to settling an already
distressing situation. If we are to allow neonatal euthanasia at all,
shifting the ultimate choice from relatives to medical experts should
occur before an intra-familial battle royal arises, such as the case
of Terri Schiavo.

~ Bioethical Inquiry, May 5